Monday, February 4, 2013

Share the Love for Quinn 2013: A video (post 23)

Over the weekend, I was thinking about all the different things that we could share about life these days. Cystic fibrosis, Quinn, treatments, growth, family, prayer, medication, insurance, friends, thankfulness, fear...

and I realized

I am really nervous.

When we shared some of this journey in 2011 an unexpected benefit for me was processing through some things that I didn't even know were there. It was good but it was also really emotional. There are joys to name but also fears that lurk. Because we love this kid so much I'm a little nervous about sharing and getting all emotional. But, if you know me, then you know that is part of how I'm wired so, maybe you could pray for me? And for Quinn, Ryan, and Sela? For all of us as we invite you into some sacred space.

 Quinn's tiny feet (1 day old)

Ryan, Quinn (6.75 years old), and Sela (3)
(yes, Quinn is wearing a white tuxedo jacket)

On this journey of the next two weeks I hope you'll get to learn more about what Cystic Fibrosis is, how Quinn does life with this chronic illness, a mom and dad's thoughts, a visit to the CF clinic (we go on the 11th), navigating school, and maybe a first kiss story. 

The kid has moves :)

Our friends Ethan and Corina Burke made a video for us that we shared in October 2011 about Quinn's story, the CF clinic at OHSU, and what CF is. It is a little over four minutes... 



We are partnering with the Cystic Fibrosis Foundation Great Strides Campaign to raise money to fight this disease. We know there are many needs in the world right now but if you feel compelled to "Share the Love for Quinn" to donate $1 or one million dollars you can click on Team Win With Quinn and donate to our campaign to raise $3000.

1 comment:

Aj said...

Thank you for your courage to share in a most tender, sacred space of your life. Oh, this Mamahood thing. :) You are equipped and are being equipped more and more each day! Love to you, friend.