Monday, October 22, 2012

Music for Monday

Man of No Reputation by Rich Mullins

It was said this man was of no reputation  
Yet He could stop the rising storm  
With a gesture of His hand 
But He chose to use His hands to heal 
Hearts of darkness, hearts of stone  
Just like mine would be revealed
 
He was a man of no reputation  

And by the wise, considered a fool  
When He spoke about faith and forgiveness 
In a time when the strongest arms ruled
  
But this man of no reputation 

Loved the weak with relentless affection  
And He loved all those poor in spirit just as they were 
He was a man of no reputation
 
It was said this man brought only confusion  

That He'd achieve His ends by any means  
And the truth would bring revolution 
And for once they were right the truth set us free  
The hearts of the captive were His only concern 
And the powerful knew their days were ending
 
Oh, He was a man of no reputation 

And by the wise, considered a fool  
When He spoke about faith and forgiveness  
In a time when the strongest arms ruled
 
But this man of no reputation 

Loved the weak with relentless affection 
And He loved all those poor in spirit just as they were 
 He was a man of no reputation
 
One day soon the gates of Heaven will open wide 

And the Prince of Peace will come back for His bride  
But for now we live on these streets forbidding and tough  
Where push always comes to shove and it's said love's never enough  
Where a prophet in rags gives hope to a fearful world 
No injustice, no heart of darkness will keep this voice from being heard
 
Oh, He was a man of no reputation  

And by the wise, considered a fool  
When He spoke about faith and forgiveness  
In a time when the strongest arms ruled
 
But this man of no reputation 

Loves us all with relentless affection  
And He loves all those poor in spirit, come as you are  
To the man of no reputation

Monday, September 24, 2012

Music for Monday

At the Foot of the Cross

Verse 1:
At the foot of the cross
Where grace and suffering meet
You have shown me Your love
Through the judgment You received
And You've won my heart
And You've won my heart
Now I can

Chorus:

Trade these ashes in for beauty
And wear forgiveness like a crown
Coming to kiss the feet of mercy
I lay every burden down
At the foot of the cross

Verse 2:

At the foot of the cross
Where I am made complete
You have given me life
Through the death you bore for me
And You've won my heart
And You've won my heart
Now I can

(Repeat Chorus twice)


Bridge:

And You've won my heart
And You've won my heart
Now I can

(Repeat twice Chorus)


I lay every burden down

I lay every burden down
At the foot of the cross
At the foot of the cross
At the foot of the cross


By Dan Moen

Monday, April 30, 2012

Great Strides

We are making "Great Strides" towards discovering more helpful tools, medication, and treatments for Cystic Fibrosis. Great Strides, the annual walk that benefits research for CF, is coming up in May. 

In the past year a new drug has been approved that treats the underlying causes of CF--not just the symptoms! It is for CF patients with a specific gene mutation, different from the two gene mutations Quinn has, but work is being done to find additional drugs that would have a similar impact on Quinn's gene mutation. This is a big deal.

What we are saying is that RESEARCH WORKS and, yes, I am shouting :)

If you have some spare change...$5 to $50,000,000*...would you consider donating to Quinn's Great Strides fundraising campaign and get a little Quinn update too?  

(*if you have $50,000,000 would you call me directly because I have some ideas for you!)

And I'll leave you with a little Quinn story from two weeks ago.


Quinn was playing in a very cool blanket fort. I called everyone to come to the table to eat and we had a good time at dinner. After dinner Quinn headed back to the fort and a few minutes later he appeared holding his tube. His feeding tube. He decided it must have come out before dinner because he found it on the floor of his fort! The balloon had popped and it just came right out. Thankfully, we did not panic! Whew!


We began trying to insert a new tube. Without success. And then, we felt panicky. I called and talked to our on-call CF doctor at OHSU. After a little consultation we headed up to the ER at OHSU. After a G-tube comes out a new one should go back in within four hours at the most. The hole begins to change. We had covered the hole with saran wrap and some Avengers band-aids--because that makes everything better. After the initial attempts to get the tube in failed and we had our panic moment, we made a Plan B and away we went.

You have to understand that Quinn HATES having his tube changed. It raises his anxiety level, tears, and fear factor about 100%. While there were tears as we tried to get the tube in at home, he really held his composure. Up in the ER the staff was awesome and we are a pretty hands on family so being in the ER doesn't freak us out like it used to. And we are willing to say what we need and advocate for Quinn. The staff did a great job trying various ways to get the tube reinserted. Again, Quinn was talking to nurses and volunteers, chatting with the doctor, and impressing everyone with his wise and funny stories. Finally, a doctor massaged the tube back in! And Quinn was such a trooper. 


I had to think again...this is my six year old. Really? So composed. A few moments where the tears were almost coming and Quinn would just say, "That hurts." And then the staff would stop and Quinn would take a deep breath and then say something funny. And try to pop some bubbles. 


Wow. What a kid!

Wednesday, April 4, 2012

Spring Breaks and Birthdays

Last week was Spring Break and we had been looking forward to having some adventures. Our adventures were a little more homebound because there were waves of sickness passing through our home. In fact, our only days of good health were on the days we were having birthday celebrations for Quinn! 

Over the weekend leading into Spring Break Sela had been sick--fever, a head cold, and lots of snuggling. She was better so my mom stayed with Sela and Quinn Sunday night and Ryan and I were able to go to a concert...cousin Tyrone in Portland. It was an awesome concert. We were able to spend some time with Ryan's brother and sister-in-law and my sister and brother-in-law.





Monday was low-key, Ryan was home, and we were excited for Quinn's Batman birthday celebration. Tuesday Ryan headed to work and I knew I was taking a ride on the sick train. And then I knew that Spring Break adventures were going to revolve around movies. Ryan stayed home Wednesday and Thursday sick. He had Friday off too...but he was sick. Unbelievably Quinn has been the healthiest person in the family. We are thrilled with that fact!

Favorite Movies of the Week:

And for the parents:


During the week it was great to have a visit from Aunt Danae and Grandma Dougherty. They brought special gifts from the Dougherty family which Quinn has loved playing with--especially with mom and dad being sick!


Sela wanted to pose with a "gift" like Quinn.

  Quinn loved modeling his new super hero gear. Beware villains!

Sunday, March 31st...Quinn's 6th birthday! 

 We were all well enough to head out to see The Lorax. The movie theme continued.

 A birthday treat and Sela's first theater movie.


Our adventure continued with lunch at Chipotle and then Quinn got to pick out his family birthday present at the Lego shop. He was pretty excited and used some birthday money and gift money to pick out...

Batwing Battle over Gotham City! Sounds ominous doesn't it?
 

A happy birthday to Quinn...
and a movie-filled, germ-filled Spring Break for us.


Tuesday, March 27, 2012

A Batman Party!

 How fun to celebrate Quinn's 6th birthday a little early before the 31st! Quinn asked if we could have a Batman birthday party with some family friends. We got to plan a fun night with some of Quinn's favorite things: everybody dressing up, playing games, hanging out, and opening presents...
 
Super Butterfly and Batman

Batman goody bags

 The spread at the Batcave

 A Batman cake made by Mom and Quinn

 A crew of superheroes and characters:
Thor and Mrs. Penguin,
Miss Aubrey J, Violet from the Incredibles, Super Butterfly, Clara from the Nutcracker,
IronMan, Puss in Boots, Batman, and Peter Parker

 Birthday cake time!

 Sela loved the cake!

Fun opening presents with friends

Wednesday, February 15, 2012

Connected and Intentional


In Alice in Wonderland, Alice asks the Cat:
"Would you tell me, please, which way I ought to go from here?"
"That depends a good deal on where you want to get to," said the Cat.

My words for this season are connected and intentional...and so that is where I've been trying to get.

I've been glad to connect with friends.

I've been grateful to connect more with Ryan (a BIG priority for us is finding time together).

I'm connecting in a Bible Study that is good and challenging for me. The women are great.

And I'm intentionally finding time to exercise. Don't be confused that I've been "unintentionally" exercising before this--because I've never really exercised. I had a great conversation with my mother-in-law awhile back about exercise. She has seven children and started walking after the last one was born and she has been walking ever since. She encouraged me to find something that would work for me. It was really helpful and I thought if she could do it with seven kids, I can do it with two! I've been able to check out lots of exercise DVDs from the library to see what I like doing and I'm actually enjoying it. 

It is exciting to feel stronger and disciplined about exercising--and I can see improvement in ability! In fact, this morning I did Level 2 and Level 3 of Jillian Michaels' 30 Day Shred--and it was no joke, but I did it!

I'm thinking of ways to be more intentional with Quinn and Sela.

And ways to be intentional about budgets and finances.

I'm curious and intrigued and drawn to and challenged by possibilities surrounding the area of justice issues. I'm intentionally pursuing more about this with reading and attending the Justice conference in a few weeks. And thinking about more intentional action to take in this area too...

I hope to show up here a bit more...but if you don't hear from me, know that I am connecting or focusing on some way to be intentional.

Thursday, January 5, 2012

Connected

New roots...new strength...new season...new year. 

Branching out. 

New look to the blog. New thoughts. And a desire to be connected. 

Initially when I started writing/journaling/sharing here it was to be connected to others. Being more intentional about writing here and finding ways to engage with others are really important to me. 

Dating my husband. Playing with my kids. Seeking Jesus. Getting beyond myself and my insecurities. Blogging. facebook. Asking people to coffee. Taking care of myself. More fun. Less worry. Thinking outside the box. Choosing relationship over task. Less guarded. More vulnerable. Trying new things. More hope. Less fear.


Connected. Intentional.