Sunday, May 22, 2011

Great Strides Walk

Saturday was the Great Strides Walk! My blog series, "Sharing the Love for Quinn" mentioned this walk and how we were raising money for and awareness about Cystic Fibrosis.

Team Win With Quinn assembled in Portland with 900 other people to walk for friends and loved ones with Cystic Fibrosis (CF). We consider many people to be a part of Team Win With Quinn but it was a joy to have aunts, uncles, cousins, family, and friends represent those that love and support Quinn as we navigate through this world with CF.


Quinn was jazzed to be a leader and was trying to decide what he would say to the group when they all gathered. When the time came, he got shy :) He was excited to hold one of the signs.

The teams were sent along the 3 mile walk based on how much money they had raised. All the figures weren't in for our team yet but I am pleased to report that with your help we raised $4631.45! Plus, students at George Fox University raised $3701 for Team Win With Quinn through a charity event called Mr. Bruin.

SO the grand total is $8332.45 (with a few more dollars yet to be counted)! Isn't that amazing! Our goal was $5000...that is $3332.45 over our goal! Thank you! Thank you! Thank you!


Here is the team at the half way mark! I'm not in the photos...not because I was taking them but because I was sick and at home with Sela. It was a sad, sad morning with a lot of tears from this mama. I had a fever and we felt it wasn't a good plan for me to be around folks for the day. My sister in law would send me texts with pictures and I would cry and celebrate whatever they were doing at that moment. We asked the team to wear green (Quinn's favorite color) so Sela and I wore green at home.


The Portland Great Strides event raised over $200,000 and had the most participation they've ever had. It was such a good thing for us to be a part of this year. To be advocates in a new way for Quinn and others with CF, and to identify with this community (all CF patients were asked to wear a little button rose so patients could make wise decisions about interaction. CF patients are asked to have limited contact with one another because studies show that bacteria transmitted from one patient to another is tougher to eradicate).

Teams were there for little ones with CF, older ones with CF, and in memory of friends and family who had CF.


After the actual walk, there was a big picnic lunch and an opportunity to head to Oaks Park (an amusement park). Quinn had a great time playing with his cousins on lots of rides. He had an adventurous spirit!



By the time Quinn got home he was totally wiped out! And started complaining that his ear was hurting. A LOT. After a quick trip to the doctor and a call to the CF doctor, Quinn got on a round of antibiotics for an ear infection and we got some instructions for additional ways to help Quinn was a lingering cold and cough.

It was a BIG, BIG day! And a BIG, BIG fundraising effort! Thank you for journeying with us...either in person or through our blog. Thanks for taking the time to care: whether through donations, words of encouragement, prayer, or some kindness. Each is special to us.

Thanks for sharing the love for Quinn!

Monday, May 16, 2011

Music for Monday

Hosanna by Brooke Fraser
(sung here by Hillsong United)

I see the king of glory

Coming on the clouds with fire
The whole earth shakes
The whole earth shakes

Yeeeah

I see his love and mercy
Washing over all our sin
The people sing
The people sing

[Chorus]
Hosanna
Hosanna
Hosanna in the highest [x2]

I see a generation
Rising up to take their place
With selfless faith
With selfless faith

I see a near revival
Stirring as we pray and seek
We're on our knees
We're on our knees

[Chorus]

Heal my heart and make it clean
Open up my eyes to the things unseen
Show me how to love like you have loved me

Break my heart from what breaks yours
Everything I am for your kingdoms cause
As I go from nothing to
Eternity

[Chorus x2]

Hosanna in the highest

Sunday, May 15, 2011

Little Sister Watching Brother


Nose pressed against the screen door watching big brother. Little sister loves big brother.

Saturday, May 14, 2011

List, list, list

I am a list maker.
Boxes to check off. My own little system. My brains in a book.


It appears that my son may be a list maker as well. Illustrated.

A list of possible birthday gifts for his cousin.

Lists. Side by side. I didn't know that being Type A was hereditary.

Friday, May 13, 2011

The Year that Changed the World

One of the things that is life-giving to me is reading. Fiction, non-fiction, anything. I love history. I can think of lots of things I'd like to learn more about or things I would research for a PhD and one of them is the series of events in the late 80's that led to the fall of the Berlin Wall. The fall of communism in Eastern Europe, the changes in the USSR, the individuals that sacrificed for the opportunity to have choices. I finally got a chance to read "The Year that Changed the World: The Untold Story Behind the Fall of the Berlin Wall" by Michael Meyer. Great journalistic account from interviews during the revolutions. Conversations, rallies, strategy sessions, and thoughts from leadership--those that sought leadership and those that had leadership thrust upon them. History really is the study of leadership. Reading this book while watching the wave of changes in the Middle East--different circumstances and history but similar in the willingness of individuals to stand up for their commitment for change and a better future. I lived in Egypt in the Spring of 1997 and it holds a special place in my heart.

Thursday, May 12, 2011

Prayer

A picture taken by my brother-in-law Kyler during a prayer time for
Derek and Tori's soon-to-arrive baby boy.

The photo Kyler took plus Kyler's artistic magic.
A sweet gift from Kyler to remember a precious moment.


Tuesday, May 10, 2011

Sweet Feet

I love Quinn's questions. After Palm Sunday services Quinn asked me what happened to King Herod after Jesus was a man? Ahhhhh...good question. Do you know that it is Herod's son, also called Herod Antipas, that questions and mocks Jesus before handing him back over to Pilate (Luke 23)? As a side note, isn't that an interesting continuation of the relationship of Herod's family with Jesus? Herod wanted to find the baby Jesus in order to kill him. The son of Herod finds Jesus and participates in sending him to his death. Palm Sunday Quinn and I began reading through Luke and the Passion Week. I appreciate how open and interested Quinn is in hearing from the Bible. Thursday night (Maundy Thursday or Holy Thursday) we read through John 13 about Jesus washing the disciples' feet as well as reading in Luke about the Passover Meal. I told Quinn that we were going to do something together and Quinn was eager to discover why we had a bowl of water on the floor. I told Quinn that I was going to wash his feet like Jesus had washed the feet of the disciples.

And then Quinn wanted to wash everyone's feet.



It was a really sweet time of foot washing. Talking about Jesus' words to serve and love. Serving one another. And as Quinn washed Sela's feet he said, "I love you, Sela".

Good Friday we read through Luke's account of Jesus' crucifixion. So painful. We talked about how Jesus was the "Light of the World". I had a candle lit and as we finished reading about Jesus' death, we blew out the candle because the Light of the World had died.

Sunday morning we turned up the Easter Song loud and celebrated the resurrection of Jesus. And lit our candle.

He is Risen!

He is Risen indeed!

Monday, May 9, 2011

Music for Monday

Everything by Tim Hughes

God in my living
There in my breathing
God in my waking
God in my sleeping

God in my resting

There in my working
God in my thinking
God in my speaking

Be my everything

Be my everything
Be my everything
Be my everything

God in my hoping

There in my dreaming
God in my watching
God in my waiting

God in my laughing

There in my weeping
God in my hurting
God in my healing

Christ in me

Christ in me
Christ in me the hope of glory
You are everything

Christ in me

Christ in me
Christ in me the hope of glory
Be my everything

We sang this song in our Women's Bible Study group last Thursday and our worship leader spoke a few additional verses:

God in my cleaning
God in my changing dirty diapers
God in my hard telephone calls

It struck me as such a strong reminder of God's presence in us and every moment of the day. Wow...


Sunday, May 8, 2011

a food processor: May Meal Plan

I finally did a little writing for "a food processor" which is my other blog. If you like to think about food, meal planning, and the like then hop on over and take a look!

Saturday, May 7, 2011

The Cheesecake Factory for Quinn

A few weeks ago we were able to go to the Cheesecake Factory to help celebrate my brother in law's birthday! It was a fun time, the food was good, and of course there was dessert!

Quinn's eating has improved A LOT! He has been asking for food, eating more, and enjoying meals. He actually asked us for french fries from McDonald's which he had NEVER done before and we were glad to oblige!

When you go to the Cheesecake Factory, it is a great opportunity for Quinn to get a LOT of calories. And of course I took one for the team to help Quinn with his cheesecake of choice, Reeses Peanut Butter Chocolate Cake Cheesecake. Yes, it was sooooooooo gooooooooood.

Friday, May 6, 2011

Quinn's latest trip to the CF Clinic

We were up at the CF Clinic this past week for a regular check up for Quinn. At our last appointment we discovered that Quinn had gained less than a pound between his November and February appointments. One change made at the February appointment was to add an additional half can of formula each night when we do Quinn's night tube feeding.

In the last three months, Quinn's appetite has GROWN! Seriously, it is remarkable!

We felt like Quinn had been gaining weight but wanted to see the "official scale" at the clinic. In February Quinn weighed 37lbs, 4.1ozs. In May, Quinn weighs 41lbs, 7.1ozs.

HE GAINED 4 POUNDS! WHAT!? SERIOUSLY!?

He also grew another inch. He feels so big and heavy! We were so thrilled and so were his doctor, nurse, and nutritionist! While the extra formula is helpful, it really is Quinn's improved eating that is making the difference.

Quinn also gave multiple vials of blood...not fun but he was a total trooper and scored a nerf gun out of the deal from the medical staff. His labs came back great which is SO wonderful. His lungs were great which always makes us glad.

For now, we just keep doing what we're doing. And enjoy a great appointment.

Monday, May 2, 2011

Music for Monday

I had to pull out the Easter Song again today...because we don't have to just celebrate Easter on Easter. We get to celebrate the Resurrection of Jesus all the time. And, I found Keith Green singing the Easter Song live at the Daisy Club in LA in 1982. Some old school Keith Green is good for the soul...7 minutes of someone passionate about Jesus.

"The Easter Song"

Hear the bells ringing

They're singing that you can be born again
Hear the bells ringing
They're singing Christ is risen from the dead

The angel up on the tombstone
Said he has risen, just as he said
Quickly now, go tell his disciples
That Jesus Christ is no longer dead

Joy to the word, he has risen, hallelujah
He's risen, hallelujah
He's risen, hallelujah

Hear the bells ringing
They're singing that you can be healed right now
Hear the bells ringing, they're singing
Christ, he will reveal it now

The angels, they all surround us
And they are ministering Jesus' power
Quickly now, reach out and receive it
For this could be your glorious hour

Joy to the world, he has risen, hallelujah
He's risen, hallelujah
He's risen, hallelujah, hallelujah

The angel up on the tombstone
Said he has risen, just as he said
Quickly now, go tell his disciples
That Jesus Christ is no longer dead

Joy to the world, he has risen, hallelujah
He's risen, hallelujah
He's risen, hallelujah
Hallelujah