Tuesday, February 1, 2011

Share the Love for Quinn

It has been four years and 10 months since Quinn was diagnosed with Cystic Fibrosis.

From our initial shock and fear when we discovered Quinn had blockage in his intestines, three surgeries, a month in the NICU, and confirmation that Quinn had the genetic markers for CF...

...until now...

We've mostly kept our experience and process close to our hearts. But we've made a decision to take a step out this year and share some more about this experience--this journey--of what life is like for Quinn and our family. We want to help educate others about Cystic Fibrosis and "Share the Love for Quinn" to help raise funds for research to find a cure for Cystic Fibrosis.

We are Team Win With Quinn and we are partnering with the Cystic Fibrosis Foundation Great Strides Campaign to raise money to fight this disease. We know there are many needs in the world right now but if you feel compelled to "Share the Love for Quinn" to donate $1 or one million dollars you can click on Team Win With Quinn and donate to our campaign to raise $5000.

From February 1st to Valentine's Day I'll be blogging about this journey--our latest CF clinic appointment, how we talk about CF with Quinn, the truths we've discovered about living with a chronic illness, how we use Quinn's feeding tube, and a whole lot more...

So "Share the Love for Quinn" and consider donating to a cause that will impact Quinn's life!

2 comments:

Smith Family said...

Thanks for sharing something so close to your heart.

Anonymous said...

Wow Mer! THANK YOU for sharing. I know it must be so difficult to open your personal lives and hearts up for all to see. You are in my thoughts! Your kind, gentle heart has not changed since Cairo!

Tami