Thursday, October 29, 2009

Sela is negative for cystic fibrosis

We spent the morning at OHSU which was an adventure because of the swine flu. At the check in area the front desk people were directing people to sit in the flu symptoms section or the non flu symptoms section. Lots of people with masks and lots of hand sanitizer. My goodness! Thankfully it was just Ryan, Sela, and me but we do take Quinn up next week. Masks for everyone!

We had Sela's sweat test appointment--she was a real trooper! She was wrapped up really warmly with two little "thingies" (that isn't that medical term but I don't know what it is) were attached to her arms to collect sweat. And sweat she did! This is great because it is hard to get sweat from little ones to be able to test for CF. They collected a great sample and said we would get a call this afternoon about the results.

So we waited all afternoon knowing that her first screening had come back negative but we wanted to have that final stamp of approval.

It was after 4 and we still hadn't heard so I finally called the CF clinic's nurse and left a message--"please call us!" Our nurse Ben, who is the BEST nurse around, called us about 4:30. He said that since he was calling us and not the doctor...there was good news. Her test came back clearly negative!

Praise God! We are so thankful and are still trying to let this soak in. I think I still have some mixed emotions. So glad for Sela and at the same time I feel very positive for Quinn. So glad she won't have to endure whatever issues CF could bring, but so thankful for Quinn's health and hopeful for him.

The sweaty little girl just got a nice bath. She smells good. She has lots of little rolls covered up in pink pajamas. Her big brother is in bed in his favorite fireman pajamas, sound asleep with his feeding tube hooked up. We are thankful for these two and the privilege to be their parents.

Amen.

Monday, October 26, 2009

Yeah for Sela!

Sela is growing and changing and making us smile each day. She is very attentive and will focus with a "furrowed brow" as she gazes intently at you. She is smiling and cooing--if you talk to her she'll often coo back. She is eating very well and I usually get up with her twice during the night. Next week we go in for her two month check up and we'll get her official weight then but we did our own little "weigh in" and she was 9 pounds, 2 ounces as of October 21st and she was 6 pounds, 15 ounces at birth.

Sela's early initial screening for cystic fibrosis came back negative...we are feeling very cautiously optimistic that Sela does not have CF. We will go up to OHSU on the 29th to do a sweat test for her which is considered the golden standard for CF testing. It is very promising that her initial tests came back negative for CF and we'll be able to have immediate results after the test on the 29th
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Here are some photos of Sela from each week...it is fun to see the changes!

Sela Ruth Dougherty 9/1/2009
Week 1

Week 2

Week 3

Week 4
(notice Sela's "furrowed brow"--a typical Sela look)


Week 5

Week 6
Sela has been smiling for a little while... it usually involves her closing one eye and giving you a little grin

Week 7
Celebrating Ryan's birthday with a family outing to Chapters


All things Fireman

Quinn is still thrilled with all things related to firemen...fire stations, fire engines, firemen, fire hydrants, well, you get the picture. In the last month we've received an awesome fire fighter outfit and found a sweet pair of fire fighter pajamas. The fire engines have been well used and many family members and house items have been saved! We have a costume set for Halloween!





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Monday, October 19, 2009

Coming up for air...

Whew! It has been almost one month since I posted on this blog--where do the weeks go! We have pictures to share of Sela and Quinn and stories to tell! So this little post is to say that I'll be posting more so stay tuned!