Thursday, May 29, 2008

the rest of the story...

I ran into a student who was a resident in my living area my last year as an area coordinator. I reminded him of a prank that he helped clean up on his floor...and he told me the story behind the prank. I know some of you have some prank histories so you'll enjoy this one...

A prank had been pulled on his the fall, someone had brought
bags and bags and bags and bags and bags and bags of fallen leaves up to the second floor and dumped them all over. This process would have taken a lot of time and effort.

Guys had to literally crawl over piles of leaves in order to get out their doors.


The RA from that floor (the second floor), the RA from the third floor, this resident, and I spent all afternoon hauling the leaves outside.
While I was pregnant.
We completed a major task and I thanked these three guys over and over while wondering if the story behind the leaves would ever come out.

Three years later. Everything comes out in the end.

Come to find out, the roommates of the resident had pulled on prank on the guys one floor above. In response, the RA from that floor (the same RA who helped clean up the gazillion leaves) dumped the leaves in front of the rooms of that resident and his roommates plus the other rooms on that end of the floor. The RA dumped the leaves in the middle of the night and helped me clean up the leaves the next afternoon.

Do you see where I'm going with this?
The prankster/RA never said a word.

But he is getting married this summer.
And I think I'm going to buy him a rake.

Wednesday, May 28, 2008

A few shots today of the little man...

Mama and Quinn

How about a photo after a bath?

Quinn says "Ta-da" after the bath...
you can see the little tube cover on his tummy.
Doesn't he look like he is going to start singing opera?

Quinn and Dad playing Mario Kart on the Wii...Quinn's a backseat driver :)
What a funny face!

Tomorrow we head to OHSU for a little check up on Quinn's tube and some more teaching for us. We'll do another weigh in and see what happens there...

And by the way could someone order up some sunshine? It is cold and rainy outside! Brrrrr....

Monday, May 26, 2008

American Idol

I was a big American Idol fan this year...faithfully watching, but never voting! We watched it each week and I had my two favorites: David Cook and Brooke White. As the season went along, Cook kept getting better and better and I really enjoyed whatever he came up with. Did you hear what he did with Mariah Carey's "Always Be My Baby"?! Brooke had such a great personality and I loved her voice and musical style. So, I was thrilled when David Cook won American Idol and...

I bought concert tickets.

Ryan and I are going. I told him he had to.


Sunday, May 25, 2008

Catching Up to Keep Up

Last night we took a stroll to get ice cream with Quinn. It was so nice to enjoy some sunshine, ice cream, and Quinn's cute ice cream covered face. As we walked home, the dark clouds in the distance were moving closer and from the looks of the clouds it sure seemed that the reports of thunderstorms were imminent! I think we must have looked pretty funny speed walking while eating an ice cream cone. We made it home before the raindrops began but we had great claps of thunder and flashes of lightening last night with a steady rain. Quinn was sleeping and Ryan and I were playing Mario Kart on the Wii.

It has been over a month since Quinn's surgery and almost two months since Quinn's second birthday. I am really enjoying this time with Quinn--Ryan and I are both amazed, surprised, tickled, and intrigued by what Quinn shares, does, and communicates. He is a funny, bright, patient, curious, cautious, adventureous kind of kid. Can you be all those things at one time? I guess Quinn makes it happen.

He likes to hug and be held: "Mama, I hold you?" He likes to look at books and be read to. He likes to draw us pictures--today he drew me a picture that is obviously a man's head. He has drawn other pictures of hearts and helicopters. He still loves Mickey Mouse Clubhouse, Bob the Builder, Handy Manny, and Little Einsteins. He is recently become enthralled with Veggie Tales, especially "Dave and the Giant Pickle". He loves to race and will count out, "Ready! Set! GO!" and dash down the hall way. He is telling us more about what he wants to do and try, "I'll do it myself!" And, if mom and dad say we need to do something differently than he thinks should be done, Quinn is learning to talk about it which means him saying, "I'm frustrated!" and me trying not to laugh because this two year old is telling me with great sincerity how frustrated he is.

Today Quinn told us he was going "over the ridge". Not quite sure where the ridge was but that was where he was going. He has a pretty excellent sense of direction (unlike his mom) and likes to know what we are doing. He recognizes all those important logos (Nike "fwoosh", Target, Starbucks, Bob the Builder, Home Depot, the U of O "O", and George Fox). He is also quick to point out any cross he sees and will tell me about going to church.

As we walked into church this morning, the service had already started (surprise, surprise) and the congregation was singing. Quinn said, "They're singing!" We asked, "What are they singing?" Quinn said, "Songs to Jesus!"

At night, after we have Quinn's tube connected to the pump that gives him formula all night, we sit in the rocking chair and sing songs while Quinn is in bed. If he gets to choose a song, he gives a little phrase from the song as his cue: "my feet" is Thy Word, "grace" is O Lord, You're Beautiful, "Jesus" usually means a medley of Jesus Loves the Little Children and Jesus Loves Me. This is a new part of our bedtime routine since Quinn's g-tube surgery.

I think that Quinn is responding well to the g-tube addition--he has found ways to work around the tube's location as he crawls up and down chairs. He is still very patient as we put the tube/pump together and we've navigated the random night when the tube pieces come unhooked the formula leaks on Quinn and his bed rather than going into Quinn's stomach! Next week we'll go back to OHSU for some more teaching about the pump and for another weigh in. I really think Quinn has gained weight! He feels heavier to me, his clothes are filling out better (I've gone shopping for him a couple of times!), and I'm going to have to find him some new pants really soon! I can't wait to do some more shopping for him.

We are seeing an occupational therapist now to continue work with the food issues for Quinn. Even with the night feeding from the g-tube, Quinn is still eating some food for breakfast (which some kids stop eating) and we are still exploring textures and food types. He is still doesn't eat a *lot* of anything--although, he did eat all the chocolate ice cream of his ice cream cone last night which was great! Because of the g-tube, eating can now be recreational with more variety versus every meal revolving around calories. Hopefully, the OT appointments benefit Quinn with how he eats, what he eats, and the quantity of what he eats.

I'm making an effort to keep up on my blogging so I don't have to catch up! I hope to post more soon!

Friday, May 9, 2008

A Jane Austen heroine

I am Elinor Dashwood!

Take the Quiz here!

A random post for tonight...if I were to be any Jane Austen heroine (according to this lovely "test") I would be Elinor Dashwood from Sense and Sensibility. I feel a bit inspired to watch that movie very soon!

Tuesday, May 6, 2008

A great visit!

We had an encouraging visit at Doernbechers this morning--we met with one of the doctors we like really, really well and also got to see the normal crew (the nurse was named nurse of the year and he really is great)!

The infamous scale and height chart appeared...what would it say?

25 pounds, 6 ounces.
2 feet, 9 inches.

March 4th Quinn was 23 pounds, 3.8 ounces so this is a big change! Both in part to Quinn's improved eating (we still have a ways to go) and about 2 weeks with the feeding tube. The nutritionist was THRILLED and we had some conversation about whether or not to increase the calories Quinn is getting at night to a higher amount. Going to clinic today, I expected us to increase those calories but at this point we all jointly decided to keep things as they are and see what kind of gains Quinn continues to make. Fabulous!

We had an encouraging visit today and are hopeful about how things will continue to go!

Monday, May 5, 2008

Two weeks past surgery

Here are a few random pictures from the last two weeks: I call them "Quinn the runner", "Quinn the driver", and "Quinn the sleepy head".

We are all doing well. Quinn is doing great with the tube during the day--it pokes out from his shirt a little bit and he has adapted how he gets up on and down off of chairs. He is running all around like he is prone to do and is in great spirits.

At night as we get ready to connect his tube to longer tubing and a pump for the formula we find that Quinn is amazingly patient. We tell him what we are doing and he tells us what we are doing too :) We have to clamp parts of the tubes during this process and Quinn pipes in, "Clamp it!" We have a new evening routine and tonight it took us about a half hour to clean, connect, prepare, and pump so that is a huge change for all of us. Quinn is sleeping pretty well as are his parents. I usually check on him once or twice during the night just to make sure he is doing OK. We've had a few quirky moments of things going wrong and most of them we had been warned about--formula leaking in the bed, tubing wrapped around Quinn, or spilling water.

The new normal is developing and we are getting back into the groove with this new addition.

This week we have two appointments at Doernbechers--one with the CF clinic Tuesday morning and one with the surgeon on Thursday morning. Now that the surgery is done we enter the process of checking weight gain, growth, and if there are any changes that need to be made to the nightly feeding (Quinn gets about 600 calories over the course of 10 hours).

While this certainly isn't our first choice of things for Quinn to deal with, we can still see the potential benefits for Quinn in terms of weight gain and overall health. Quinn continues to be very healthy and we are so thankful for that fact! The weight gain contributes to his overall health--and I was thinking today about the amazing options available to us today that did not exist 40 years ago, 30 years ago, 20 years ago, or even 10 years ago. A feeding tube is really an amazing option! Our prayer is that the feeding tube help meets needs for right now and that ultimately, at some point, Quinn will be able to maintain his caloric needs on his own.

And Quinn, what an amazing kid. Thanks for caring about him and us!